Apologies for not blogging lately – if you want to know a little of what’s been going on, follow me on instagram here for now!
We are doing well – I can’t believe we will have been home a month next week. Even the past 10 days here have been so different and we’ve seen so many changes and can tell that Wen feels so much more at ease than he did the first 10 days home. Last weekend some good friends came over to play – 2 families – 7 kids total and he did great. I was amazed at the kind words and sharing that went on. Wen even let the other visiting boys play with his Lego toys – it probably helped that the other kids were so sweet to him and would ask his permission!
Here’s the crew…
plus there are 3 more on the way! 2 more boys and ONE girl. I just love all of these kids (and their parents too!) So thankful we can continue to get them together as they grow up.
And for a recap of the last few weeks before we bid 2015 goodbye…
We had a great day at DUKE. We were super-impressed with the spinal clinic docs and couldn’t believe how efficient the day was. We saw 4 specialists, met briefly with the physical therapy team who set us up with someone to help with Wen’s wheelchair, met with a social worker about medical coverage, etc. and they even sent a translator to help us ask Wen some specific questions during our meetings with the doctors! During one of our meetings with the doctor, the wheelchair tech showed up, took Wen’s wheelchair out into the hall and took it apart and re-adjusted it to fit better for the time being.
We go back at the end of January for some larger tests in urology and neurology but overall Wen is in good health and the only major decisions to make right now are some orthopedic options. Also, as it turns out, Wen does not have Spina Bifida as his file said, but was actually born with something more rare – Caudal Regression Syndrome/Sacral Agenesis. You can read about it here.
At Duke we could tell the doctors were pretty amazed by Wen and all he does, how good his English is, how well-adjusted he is and how he manages his disability without complaints or obstacles. We continue to be amazed daily.
Other than the Ironman (“transformer” as Wen calls it, we’re gonna have to show him the Ironman movie) and Star Wars figurines he was given as Christmas gifts from the clinic, the highlight for him was getting to go see where Uncle Sam and Aunt CeCe live in Raleigh and meet their new pup Banksy. If you want to see cuter and clearer photos of him – check out his very own instagram feed here.
We did a lot of fun things to celebrate Christmas. The boys loved going to the Aberdeen Christmas parade,
and having our own special tea party followed by the event of setting up the Nativity
The Nativity is Rand’s favorite thing to do at Christmas. We’re hoping Wen and Philip will love it too. They all loved playing with the “play nativity set” too…you can order it on Amazon. This one was given to us when Rand had his first Christmas and it’s the first thing he asks for us to bring out (usually at Thanksgiving!)
Philip especially got into setting it up and learning who was who.
On Christmas Eve, Rand and Philip were in the Nativity scene at our church. They were both shepherds. Rand wore the same headpiece from last year – a cut up old golf shirt that was his “Grandpa Hank’s” – makes me smile to see it. Philip’s was a last minute “Ikea hack” haha…I think I’ll need to dig out another heirloom if they are going to be shepherds again next year!
After church on Christmas Eve, the family came over for dinner at our house! After everyone left and the boys went to sleep, Santa showed up.
A lot of people have asked me this Christmas if we do “Santa” and the answer is yes, however, pretty much everything my kids know (or think they know) about Santa is learned from books, movies or school (i.e. the world). We don’t bring him up or talk about him at all. In fact, early in the season, I heard someone ask Rand what was on his Christmas list and he shrugged and said he’d “get what he’d get” type answer (but really he just hadn’t thought about it because we don’t talk about it). We don’t really have an answer on what is “best” to do and we don’t want our kids being the ones who burst their friends bubbles and shout out “SANTA’S NOT REAL” so for now, we just glaze over it throughout the season and make a bigger deal about what actually is THE BIG DEAL – THE BIRTH OF CHRIST!
We do talk about Santa if the kids have a question – for example, Rand said to me one day (when he wasn’t on his best behavior), “Mom, if I’m not a good listener then Santa won’t bring me any presents, will he?” which drives me CRAZY that they get told this elsewhere…we went through the same thing last year…our answer is the same: “No, you will get presents on Christmas because we love you regardless of how you behave. God loved us so much he sent us the gift of Jesus to save us from our sin when we didn’t deserve it! But in our family, we try to behave and be good listeners because we love God and want to be like Jesus.” While Santa will show up at the Smith house to help celebrate Jesus’ birthday, he will not be tolerated as the disciplinary tool for the season!!!! On that note, we made sure the best gift the kids got came from us…hey, I also don’t like to give Santa all the credit:) As their only gift from mom and dad (and as an attempt for some more new family bonding) we’re driving down to Florida very soon to go to Legoland and the Magic Kingdom!
I didn’t take enough photos on Christmas day, but this was a sweet one from Raleigh – we went and had lunch with Wes’ extended family and all the kids were so welcoming to Wen. They are always awesome with the younger kids, but I was really blown away by how they just played with him as if he’d always been in the family. What a Christmas gift it was for this mama to see.
We spent some fun time with my side of the family (I need to upload those photos still, sorry!) and then have really been hanging out around the house. We’ve had several successful movie night with Peter Pan, Beauty and the Beast and Aladdin.
We built one fire before it started feeling like summer here in North Carolina.
The boys have spent a lot of time outside playing – Wen can pretty much ride any of the toys somehow and he loves to hit golf balls and play baseball.
The boys play and play and play together. Our noise level is UP and there is always some type of fun shenanigan going on with the 3 of them…
The costumes come out all the time
Philip continues to keep us laughing. His most recent line of choice when you tell him something or he gets something he wants is, “That’s what I’m talking about!”
It’s been really fun to see them all play together and have so much fun. Our house last Christmastime was so quiet with just Rand and this year it has exploded with noise, and laughter and JOY. I have to say it was the best Christmas yet for me. I’m just so happy to have all my boys home to celebrate Jesus’ Birthday and to welcome 2016.